Stacy Kay: December 2007

Monday, December 10, 2007

Nothing much new

Stacy's been staying at her mom's a lot and keeps busy there. This way she gets up earlier, around 9-10 instead of staying in bed until I get home. She's home right now for 2 appointments this week with the dentist and a blood test for her thyroid.

She has not had a seizure since the one the University of Chicago made her have during her week-long test. She still continues to have tremors but not as bad as she was having them in August. We found out that loud music triggers them besides just relaxing her neck muscles. She has had problems with them in our church and also her mom's church and since they are different buildings the only thing is the music. At church yesterday she started tremoring within seconds of the music starting. We went to the cafe to watch from there but still she tremored so we went to the children's area until the louder music was over and then to the sanctuary to watch Dylan sing with his class. She was fine from then on.

We need to go to Elkhart General this week to pick up her CT's and MRI's and her Neurosurgeon's notes to send to the University of Chicago. Also I'm waiting on them to call me for an appointment for her neuropsych test. Everytime I call there I'm put on hold for more than 5 mins. and so I go to phone mail and leave all the info, and they never call back. I guess I'll have to find time to stay on the phone for longer periods.

Ryan

Stacy Ritenour's History

Stacy was admitted to our local hospital 12/2003 with headaches. While during a CT scan, she became unresponsive. The CT showed a brain tumor. That evening the neurosurgeon drilled a hole in her head to reduce extreme fluid pressure (hydrocephalus, once called water on the brain). Then she woke up and was doing very well. The neurosurgeon said that a cyst was blocking her 3rd ventricle which drains Cerebrospinal fluid from the brain into the spine.

The next day the neurosurgeon removed the cyst and we thought that she would be home in a week. Unfortunately that less than 1% chance of complications got us and she got bacterial spinal meningitis from the surgery. This can cause anything from no problems to death. Stacy ended up with a limited short-term memory, seizures, tremors, and because of her seizure medication, extreme tiredness.

She spent 7 months in a Rehab facility in southern Illinois, but when returning home, would just stay in bed unless told otherwise. My income does not allow us to hire anyone to help her but is too high to receive government help.

With full-blown seizures continuing for the last 4 years, I decided to look for something better for her and found Dr. Ebersole at the University of Chicago. He is highly trained in epilepsy and has worked at the National Institute of Health and the Yale Epilepsy clinic before starting the Epilepsy clinic at the University of Chicago. Her neurosurgeon also has worked for the NIH and has specialties in surgery for epilepsy and Parkinsons disease.

Stacy and I have 4 children from 9-17 and Anthony, our 17 year old had brain cancer at 8 years old. His tumor (one of the worst cancers) was removed at the local hospital and then we followed up with Chemo and radiation at the University of Michigan. After almost dying from pneumonia, they stopped the chemo and decided to see what happens from then. He is now 8.5 years in remission and will be considered cured in 1 more year. He is currently in good health although because of the radiation and chemo, has stopped growing at 5 foot tall. However we are just glad he is alive as survival rates from his cancer is only 30% at best.

Stacy Kay

Thursday, December 27, 2007

New Psyc appt.

Monday, December 10, 2007

Nothing much new

My Mom - Click picture for an amazing blog

Jeff Bowman - Ryan's previous brother-in-law

Stacy Ritenour's History

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