Tuesday, January 29, 2008

Update

Today at the University of Chicago, the Dr. conducted 40 minutes more testing. Then the pyschiatrist threw me loop and told me Stacy is clinically depressed. She told me that Stacy needs more time with her kids and also needs to see a Cognitive Behaviour Therapy Psychiatrist and may have a chemical imbalance in her brain.

For the actual reason we were there, it was not really conclusive. Normally when a person has right brain seizures the left brain is more active but they found the opposite.

The next appointment is with her neurologist on Feb. 7th. We do not know if this pneurosych-test will have any affect on possible future surgery.

Monday, January 28, 2008

Busy Time

This is a very busy time for me right now. We went to Anderson which is 3 hours for Cameron's state chess tournament. He placed 4th out of 64! His best ever for a state competition. Then we drove to Warsaw to pick up Stacy. Cameron had won a special race at a local go-kart track and so we had to go over there to pick up his prize, which was more races. Both Cam and Dyl raced a couple of times and played lazer tag. Then we went home and got there at 10:15. Sunday was a rest day. Brittany made spaghetti for supper and did a great job.

Today, Dylan came home from school early for possible strep throat. I took him to the Dr. and it was negative.

Tomorrow we go to Chicago for Stacy's psychiatry appointment follow-up. Next week Stacy is to get a new crown on her tooth, and then we go to so her Neurologist in Chicago.

All of this and having Stacy home is very stressful for me so please pray for all of us. Her mom is such a great help in watching her during the week. I feel so secure with them together as her mom was a nursing assistant for many years.

Both Stacy and I have made up our minds at this point to have the surgery to help stop her seizures if the percentages show a positive outcome. That surgery is still far off and though so we have some time before having to make the decision final. Unfortunately they do not think it will stop her tremors.

Monday, January 21, 2008

19th Anniversary

Well, it's been 19 years of marriage. Hard to believe. It certainly hasn't been the trouble-free time we always wish for. It was around 9 years ago this month that Anthony was diagnosed with brain cancer and 8 years ago when he contracted pnuemonia during chemo and almost died on us. Then 4 years ago with Stacy and her brain injury.

Stacy and I are not together this year which may be the first time but it's just another day like any other in reality. At least this anniversary was much better than the 15th when she was in the hospital. I sent her flowers and she called me. She told me she has not had any more bad tremors and that made me feel much better as I've been worrying about her almost constantly. About the only time I can think of other things is at work and that's not for long. My mind always comes back to what she is doing at that time and how much I miss her. However I know that being with her mom and doing housework is much better for her than her just laying in bed at home until I get home from work.

Ryan

Friday, January 18, 2008

A good day

I just talked to Stacy and she had a good day without any tremors. While the increase in medicine may have helped, she didn't have any bad tremors yesterday either, and that was before the increase in the medicine.

Thursday, January 17, 2008

Increase in Tremors

Stacy has been staying at her mother's in Warsaw for the last few days. Last night they called and told me she was having more tremors than usual. Some were lasting 15 minutes and they also involved her legs and arms. A reminder for those that don't know, these are not seizures in any form and do not indicate an oncoming seizure. This is unfortunately just another problem she has due to her brain damage. Today I took off work and took her to her local neurologist and he increased her Enderol to a double dose for her morning set of pills. Hopefully this will help. A good thing is that she had no problem today. It seems impossible to pinpoint as to what triggers these.

One thing they did tell us in Chicago is that if we have the surgery to help her epilepsy, it will not help the tremors since again, they are not in any way related to a seizure.

Tuesday, January 8, 2008

Very Long Day

This was a very long appointment. We got there an hour early and we had to wait that full hour before they started. The total time was 5 and a half hours with 1 hour of lunch not included. We go back for results on Jan. 29th.

The drive home was terrible. Because of the weather a portion of I-90 was full of large potholes. They were so bad that they were patching it at that time. Therefore there was a large traffic jam because it went to one lane at that point. At times we would completely stop. At one point before the patching it was so bad that we saw around 10 cars right together, along the side of the road, changing tires. We saw several more over the next couple of miles.