This is a very busy time for me right now. We went to Anderson which is 3 hours for Cameron's state chess tournament. He placed 4th out of 64! His best ever for a state competition. Then we drove to Warsaw to pick up Stacy. Cameron had won a special race at a local go-kart track and so we had to go over there to pick up his prize, which was more races. Both Cam and Dyl raced a couple of times and played lazer tag. Then we went home and got there at 10:15. Sunday was a rest day. Brittany made spaghetti for supper and did a great job.
Today, Dylan came home from school early for possible strep throat. I took him to the Dr. and it was negative.
Tomorrow we go to Chicago for Stacy's psychiatry appointment follow-up. Next week Stacy is to get a new crown on her tooth, and then we go to so her Neurologist in Chicago.
All of this and having Stacy home is very stressful for me so please pray for all of us. Her mom is such a great help in watching her during the week. I feel so secure with them together as her mom was a nursing assistant for many years.
Both Stacy and I have made up our minds at this point to have the surgery to help stop her seizures if the percentages show a positive outcome. That surgery is still far off and though so we have some time before having to make the decision final. Unfortunately they do not think it will stop her tremors.
skip to main |
skip to sidebar
Bye Mom. I love you. You were my rock during Stacy's hospitalization.
My Mom - Click picture for an amazing blog
Bye Mom. I love you. You were my rock during Stacy's hospitalization.
Jeff Bowman - Ryan's previous brother-in-law
Stacy Ritenour's History
Stacy was admitted to our local hospital 12/2003 with headaches. While during a CT scan, she became unresponsive. The CT showed a brain tumor. That evening the neurosurgeon drilled a hole in her head to reduce extreme fluid pressure (hydrocephalus, once called water on the brain). Then she woke up and was doing very well. The neurosurgeon said that a cyst was blocking her 3rd ventricle which drains Cerebrospinal fluid from the brain into the spine.
The next day the neurosurgeon removed the cyst and we thought that she would be home in a week. Unfortunately that less than 1% chance of complications got us and she got bacterial spinal meningitis from the surgery. This can cause anything from no problems to death. Stacy ended up with a limited short-term memory, seizures, tremors, and because of her seizure medication, extreme tiredness.
She spent 7 months in a Rehab facility in southern Illinois, but when returning home, would just stay in bed unless told otherwise. My income does not allow us to hire anyone to help her but is too high to receive government help.
With full-blown seizures continuing for the last 4 years, I decided to look for something better for her and found Dr. Ebersole at the University of Chicago. He is highly trained in epilepsy and has worked at the National Institute of Health and the Yale Epilepsy clinic before starting the Epilepsy clinic at the University of Chicago. Her neurosurgeon also has worked for the NIH and has specialties in surgery for epilepsy and Parkinsons disease.
Stacy and I have 4 children from 9-17 and Anthony, our 17 year old had brain cancer at 8 years old. His tumor (one of the worst cancers) was removed at the local hospital and then we followed up with Chemo and radiation at the University of Michigan. After almost dying from pneumonia, they stopped the chemo and decided to see what happens from then. He is now 8.5 years in remission and will be considered cured in 1 more year. He is currently in good health although because of the radiation and chemo, has stopped growing at 5 foot tall. However we are just glad he is alive as survival rates from his cancer is only 30% at best.
The next day the neurosurgeon removed the cyst and we thought that she would be home in a week. Unfortunately that less than 1% chance of complications got us and she got bacterial spinal meningitis from the surgery. This can cause anything from no problems to death. Stacy ended up with a limited short-term memory, seizures, tremors, and because of her seizure medication, extreme tiredness.
She spent 7 months in a Rehab facility in southern Illinois, but when returning home, would just stay in bed unless told otherwise. My income does not allow us to hire anyone to help her but is too high to receive government help.
With full-blown seizures continuing for the last 4 years, I decided to look for something better for her and found Dr. Ebersole at the University of Chicago. He is highly trained in epilepsy and has worked at the National Institute of Health and the Yale Epilepsy clinic before starting the Epilepsy clinic at the University of Chicago. Her neurosurgeon also has worked for the NIH and has specialties in surgery for epilepsy and Parkinsons disease.
Stacy and I have 4 children from 9-17 and Anthony, our 17 year old had brain cancer at 8 years old. His tumor (one of the worst cancers) was removed at the local hospital and then we followed up with Chemo and radiation at the University of Michigan. After almost dying from pneumonia, they stopped the chemo and decided to see what happens from then. He is now 8.5 years in remission and will be considered cured in 1 more year. He is currently in good health although because of the radiation and chemo, has stopped growing at 5 foot tall. However we are just glad he is alive as survival rates from his cancer is only 30% at best.
No comments:
Post a Comment